CeremonyCast is proud to support a range of Australian charities helping people through different life issues.
We see at first-hand the inspiring work they do in the community by helping people to navigate grief and bereavement, offering practical care after someone dies, reaching out to those in personal crisis, guiding those on their final journey, or advocating on important issues. We are glad to give back by regularly donating to these deserving causes.
This month we’re supporting RUN DIPG. Our donation is in memory of 5 year old Alex, whose funeral we live streamed.
RUN DIPG is a charity dedicated to improving outcomes for patients, families and communities impacted by the deadliest form of childhood cancer, diffuse intrinsic pontine glioma (DIPG).
DIPG, or diffuse intrinsic pontine glioma, is a type of brain tumour found in an area of the brainstem known as the pons. The name diffuse intrinsic pontine glioma describes how the tumour grows, where it is found, and what kinds of cells give rise to the tumour. DIPG is also known as diffuse midline glioma, DMG.
DIPG cancer primarily affects children, with most diagnoses occurring between 6 and 6 years of age. It makes up 10-15% of all brain tumours in children, with about 20-25 new diagnoses per year in Australia. Unfortunately, fewer than 10% of children survive two years from diagnosis.
- Brain Cancer kills more Australian kids than any other disease, with DIPG/DMG being the single largest disease type.
- The median life expectancy post diagnosis is 9-11 months
- Currently radiation therapy is the only treatment and this a palliative.
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Other useful links:
- Click here to see all our charity donations to date
- Read our advice on preparing yourself to watch a funeral live stream
- How to look after yourself and others when a funeral is over